Mom Know-How
Embracing the Shadow: Autism's Special Heroes




About the author:
Zach has had great shadows in his life, especially big brother Ezra. We as parents need to know we can't do it alone. We need to find shadows and treat them like the angels they are.View Sheila's profile
By Go-To Mom Sheila Lewis, New York, NY
Children with autism face doors shutting in their social world, perhaps more so than children with other disabilities. Although this may be especially painful for us as parents, the reality is, as our cute little children grow older, they grow bigger and harder to manage, and less cute. Parents need to start mobilizing a team of "angels" who will support and befriend them, and even on occasion relieve them so parents can go out or have some "alone time" with their other children.
In schools, "shadows" are assigned to be one-on-one, primarily looking after one child with a severe disability, like an autism spectrum disorder. The shadow is there to anticipate, redirect, and serve as that extra pair of hands. Their training is important, but not nearly as important as their ability to connect.
Story continues belowOur older son was a natural shadow and coach to his brother, who is over three years younger. Ezra worked while in college as a "shadow" at a nursery school for a 4-year-old boy with autism, and now works professionally in a school for children on the autism spectrum. The shadow can teach valuable skills, such as how to have a conversation, street and safety smarts, how to throw a ball, or to say "thank you" using eye contact.
However, a shadow does not do the work for the child. Rather, he models how to get dressed or fix a sandwich. Eating is a big deal. Children with autism frequently have food sensitivities. A shadow can help at stressful meal times. At school, it might be to offset a potential tantrum if a new food not on the menu is served.
Sometimes a day program, religious school, after-school program, or camp will provide a one-on-one shadow for little or no extra cost. We were fortunate for Zach: we paid a nominal fee for older teens to shadow him during regular, weekly "mainstream" Hebrew school. You may need to get a doctor's or psychologist's report to receive funding from your school district for a shadow. Ask your special education committee chairperson.
The best a shadow has to offer is a gentle, consistent, yet demanding approach, relating to her charge as someone who can do better and perform tasks ahead of what is expected by the teachers or parents. Parents need to look for potential shadows: people with the ability to connect, compassion, energy, and creativity. Their degree of sensitivity is more important than any professional degree. Shadows come in handy on a rainy day, or for a special occasion. They are heroes, often unsung, but angels to families with children with autism.
What do you think of this story?
ClubMom member Lisa from Johnston, RI wrote on Jul 10, 2006 at 09:27 PM:
View Lisa's Profile
My son has autism so I liked reading about this ...thank you! Lisa in RI
3 out of 3 moms found this comment helpful.
ClubMom member Dianne from Glenelg, MD wrote on Jul 11, 2006 at 07:07 PM:
View Dianne's Profile
My son also has Aspergers Syndrome, a form of autism. I applaud the mom for noting that compassion, etc. is more valuable than any professional degree. A child can sense when someone is genuine, and a degree does not guarantee that. My son taught me so many lessons over the years. As a result, several of the special children I tutor are on the spectrum and I have had them for several years. Having lived with autism, it is easier for me to anticipate their needs. I've learned to be open to anything in the effort to see the world through their eyes. They know that and trust me. I have received far more from them than I could ever give. What a blessing they are! Dianne in Maryland
1 out of 1 moms found this comment helpful.
Become a part of the ClubMom community!
Join ClubMom free to comment on this article. If you're already a member, please sign in.



